Articles on Privacy

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Scrapping the national census raises data sovereignty and surveillance fears for Māori

Social licence and consent are central to trust in state data systems. Changes to the way census information is gathered make this especially important for Māori.
Advances in neurotechnology, including AI applications, need to be regulated. (Shutterstock)

New recommendations for regulating neurotechnology in Canada include protecting Indigenous rights

UNESCO’s approach to regulating neurotechnology considers future applications and current privacy and consent concerns.
Biobanks have become some of the most transformative tools in medical research, enabling scientists to study the relationships between genes, health and disease on an unprecedented scale. (Piqsels/Siyya)

A golden era for personalized medicine is approaching, but are we ready?

By understanding a patient’s unique genetic profile, biomarker readings and lifestyle information, doctors could tailor the most effective and safest treatments for that individual.
For companies like 23andMe, consumers are as much the product as the DNA test kits. Veronika Oliinyk/iStock via Getty Images Plus

23andMe is potentially selling more than just genetic data – the personal survey info it collected is just as much a privacy problem

If you were a 23andMe customer, your genetic and personal information could be used in civil or criminal cases, targeted advertising, medical discrimination and so much more.

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